Our 5th Annual Neuroblastoma Parent Education Conference – ‘Understanding the Landscape of Neuroblastoma Research’ – was held at Latimer Place in Chesham.

This main aim of the conference was to inform parents and families on current and upcoming trials and research surrounding the disease affecting their children. Navigating the landscape can be overwhelming and this conference aimed to empower families to make informed decisions on behalf of their children.

We were joined by leading clinicians and researchers both from the UK and around the world. As well as a combination of presentations and open panels, the conference featured our Gala Dinner, which provided more opportunities for families and researchers to network and socialise in an informal setting.

We are very grateful to all the speakers who volunteered their time to attend the conference and for allowing us to share their presentations, which you can watch below.

Overview of high-risk neuroblastoma - Professor Deborah Tweddle, Great North Children’s Hospital, Newcastle upon Tyne



Overview of relapse treatment/refractory disease and BEACON/BEACON 2 - Dr Lucas Moreno, Hospital Niño Jesús, Madrid





Radionuclide Imaging & Therapy - Dr Mark Gaze, University College London Hospitals



ch14.18 + I/T + GM-CSF, COG - Dr Rajen Mody, C.S. Mott Children’s Hospital, Michigan



GPOH Research and perspectives - Professor Thorsten Simon, Children’s Hospital, University of Cologne



MSKCC, VACCINE, 3F8, hu3F8, NK Cells - Dr Shakeel Modak, Memorial Sloan-Kettering Cancer Centre, New York



Symptom management & care - Dr Anna-Karenia Anderson, The Royal Marsden Hospital & Shooting Star CHASE Hospices



Long-term follow-up care - Emma Potter, Clinical Nurse Specialist, the Royal Marsden Hospital



Post-Traumatic Stress – children and parents - Dr Anne Kazak, Nemours/Alfred l. DuPont Hospital for Children



SIOPEN HR-NBL1, VERITAS - Dr Guy Makin, Royal Manchester Children’s Hospital



Immunotherapy inc. INBRACED 2 – MIBG + ch14.18 + PD1 - Dr Juliet Gray, University Hospital Southampton



CAR T-CELL therapies - Professor John Anderson, Great Ormond Street Hospital



ALK, MYCN, PD(-L)1, eSMART - Professor Louis Chesler, The Institute of Cancer Research



Perspectives and future challenges - Dr Lucas Moreno on behalf of Professor Andy Pearson, formerly the Royal Marsden Hospital and the Institute of Cancer Research