Five-year-old Beatriz, or ‘Bibi’, is a gorgeous little cutie pie - just don’t tell her that. She’s also completely fierce. Her favourite things are drawing, dancing, putting on fashion shows and making YouTube videos with her big sister Clara.
 

She keeps her amazing nurses on their toes and terrifies the consultants. “She’s weird, wonderful and amazing - she wants to be a YouTuber (!) when she grows up. And she is genuinely one of the funniest people we know,” says her mum, Laura. 

At two and a half, Beatriz suddenly became very clingy and unhappy. Her parents thought it was just a phase. But she was diagnosed with high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival. 

Since being diagnosed in 2018, Beatriz has undergone extensive treatment both in the UK and in Spain. To date, your donations since the family launched their fundraising campaign with Solving Kids’ Cancer in 2019, have funded 8H9 (radioimmunotherapy) treatment, surgery to remove the original tumour, hu3f8 antibody treatment and Proton Beam Therapy all in Spain with the aim to get Beatriz into remission. 

Beatriz is currently NEAD (No Evidence of Active Disease) and her family are asking for your support to help raise a further £181,000 to reach their fundraising target of £384,000 access the Bivalent Vaccine clinical trial in New York with the aim to keep the cancer away for good. Due to the design and option for potential randomisation within this trial, individual families’ fundraising targets may differ. SKC’s Individual Treatment Budgets are formulated to take into account families’ specific needs and requirements. both of which will contribute to the variance in targets for this particular trial.  

Beatriz’s story

Beatriz had already become really clingy by the time she had stopped eating. Beatriz with curly hair, lying in bed looking at the camera

“We thought she was just being picky,” says Laura. “When she had a fever for four weeks, we were told it was a recurring virus. When she refused to walk because her legs hurt, then we got really scared.” 

After weeks of trips to the doctors and A&E, they were called into a room at the Whittington Hospital and told the news that would turn their lives upside down. There was a lump and it was suspected neuroblastoma, a rare form of childhood cancer. 

“We went to Great Ormond Street Hospital the next day and started intensive chemotherapy within the week.” 

Beatriz has spent so much of her short life in hospital, including birthdays and Christmas. She’s had hundreds of injections, countless general anaesthetics, endless chemotherapy drugs and lost all her amazing curly hair. 

Sadly, before being able to complete her optimum standard of frontline treatment on the NHS, Beatriz’s disease progressed. 

Accessing the BEACON Immuno Trial 

After those scans showed disease progression in May 2019, the standardised frontline treatment plan was paused and she went on to complete 6 cycles of treatment on the BEACON immuno trial until May 2020, with scans showing stable disease post-treatment. 

The next treatment steps for Bibi were to enrol on the MiNivAN trial in the UK and then undergo surgery to remove her original tumour. However due to the COVID 19 pandemic, the MiNivAN trial was closed to new patients and so Bibi continued to be treated with BEACON chemo, with the plan to wait until the trial reopened and for Bibi to have surgery after. 

Further Treatment in Spain 

In June 2020, whilst a 2nd opinion was being sought by the family in regard to Bibi’s surgery, a spot in Bibi’s brain seen in a prior scan had increased in size whilst other disease was deemed inactive. After consultation, the family decided that 8h9 treatment (radio-immunotherapy treatment direct to the brain) at the Hospital Sant Joan de Déu Barcelona in Spain was the best option for Bibi. 

After having surgery on the brain spot, Bibi received craniospinal radiation before receiving 1 cycle/round of 8h9 treatment and then surgery to remove her original tumour. Bibi then went on to access 5 cycles of further immunotherapy antibody treatment (hu3f8). 

She has just completed 14 rounds of proton beam therapy, which is not yet available in the UK for neuroblastoma, at the Quiron Salud centre in Madrid and will then start taking an oral chemotherapy drug to tackle any potential leftover rogue cancer cells before hopefully then being clinically ready to start the Bivalent Vaccine trial. 

Beatriz’s fundraising campaign

Beatriz’s family are asking for your help to raise a further £181,000 to reach their fundraising target of £384,000 so Bibi can access a clinical trial in New York that aims to reduce theLittle girl sat on hospital bed celebrating the end of treatment chances of her neuroblastoma returning. The treatment is currently not available on the NHS. 

“Having Solving Kids’ Cancer, a specialist neuroblastoma charity, to help us is comforting. They are an amazing charity that help families throughout treatment and beyond, and endlessly push for more research into this disease. Any money we don’t use will be used for research - to help other children. And that’s important to us.” 

How you can help

There are many ways you can help Beatriz: by sharing her story on Facebook and Instagram; by making a personal donation; holding a fundraising event; getting sponsored to take on a challenge.

Download our free Beatriz resources to support your fundraising.

Campaign poster  Event poster Sponsorship form

To donate by text, send “BEATRIZ” followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won’t matter if you leave a space before the number, if you include a ‘£’ sign or whether you use upper or lower case.

If you’d like help supporting Beatriz’s campaign, please get in touch with the fundraising team on 0207 284 0800 and [email protected]

Please select a donation amount (required)
Set up a regular payment Donate