Henry is a very happy, clever little five-year-old who loves nothing more than dressing up as a firefighter with his little brother and best friend Oliver. Henry is obsessed with anything fireman related and tells everyone what's going to happen when he’s old enough to go to firefighter school.

To get there Henry has to battle a disease no child should have to. He has high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis.

In November 2020 Henry’s fundraising target was revised from £202,000 down to £163,000 due to the family making personal sacrifices and finding the least expensive options and cost saving opportunities for their future travel.

We are delighted to confirm that Henry has now completed the bivalent vaccine trial in New York and remains in remission. As a result of the family’s continuous efforts to source the least expensive options for travel and not needing to access the treatment centre mandated contingency funds they have done so within the funds already raised.

Henry's story

Just before his fourth birthday Henry started to feel unwell and became withdrawn. "Over the course of a month, he stopped eating, had no energy and started to complain of pains when he walked. He just wasn’t himself," says Henry's dad, Graham.

"After a couple of visits to the GP and no improvement, we were referred to the Children’s Assessment Unit at the Queen's Medical Centre (QMC), Nottingham."

Initially, it was suspected it was a virus or infection but in early June, whilst having an MRI scan, a large tumour was discovered in his abdomen. Further tests confirmed that he had high-risk neuroblastoma with n-myc amplification. 

Henry The Brave

Having endured more in twelve months than most of us will have to deal with in a lifetime, and all throughout with an attitude of 'just getting on with it', Henry has been given the appropriate nickname 'Henry The Brave'.

"Even in the darkest of times you can still get a thumbs up or will be lasered by his Buzz Lightyear blaster!" 

In June 2019 Henry started with eight rounds of chemotherapy on the Rapid Cojec regime followed by two more rounds of TVD. This allowed him to have a stem cell harvest at Sheffield Children’s Hospital.

On 19th December 2019, Henry underwent a seven-hour surgery to remove his tumour and part of his liver. Sadly this meant Christmas 2019 was spent in hospital but the PCCU and E39 wards at QMC were amazing.

January 2020 saw Henry undergo high dose chemo and a stem cell transplant, which requires a long period of isolation. 

Henry is currently undergoing 5 cycles of immunotherapy after having to postpone radiotherapy treatment due to Covid-19 and suffering from Veno-occlusive disease resulting in Henry spending 7 weeks in hospital.

Henry's fundraising campaign

Thanks to your support, Henry was able to enrol on the bivalent vaccine trial in New York in January 2021. Henry has since completed the trial and remains in remission.

"Every child deserves the chance to enjoy a normal life. We are very grateful for everyone’s support, it helps to provide options and opportunities, whatever direction his journey takes," says Graham.

How you can help

There are many ways you can help Henry: by sharing his story on Twitter and Facebook; by making a personal donation; holding a fundraising event; getting sponsored to take on a challenge.

Download our free Henry resources to support your fundraising.

Campaign Poster Sponsorship Form Event Poster

To donate by text, send “HENRYB” followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won’t matter if you leave a space before the number, if you include a ‘£’ sign or whether you use upper or lower case.

If you’d like help supporting Henry’s campaign, please get in touch with the fundraising team on 0207 284 0800 and [email protected]

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