Rupert is smart and wise and always eager to impress. He leaves an impression with everyone he meets.  He loves shows, especially panto, dinosaurs and everything orange!

Rupert has just turned five and has spent the past year in and out of hospital undergoing treatment for high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis.

Rupert’s Story

After a long wait and IVF Rupert arrived in 2015, followed by his little sister Margot two years later.

In October 2019 Rupert's parents, Alice and Ollie, took him to their GP as he had no appetite and bouts of sickness over a couple of weeks. He was initially admitted to East Surrey Hospital with suspected appendicitis and then to the paediatric surgical unit at St George's Hospital, Tooting.

After an awful week of endless blood draws, scans and finally a biopsy Rupert was diagnosed with a large retroperitoneal tumour, confirmed as high-risk neuroblastoma on 8th November 2019 and he started chemotherapy the following day.

Starting treatment meant that Rupert spent his fourth birthday at the Royal Marsden in Sutton where he is still being treated.

Treatment

Rupert has endured eight rounds of Rapid COJEC protocol chemotherapy, a nine-hour surgery to remove his tumour, high dose chemo followed by a stem cell transplant and twelve sessions of radiotherapy. He is currently undergoing immunotherapy and will finish frontline treatment in January 2021. 

As a result of chemotherapy, Rupert has already suffered some hearing loss and kidney damage and developed an allergy to platelet transfusions.  He also experiences a lot of anxiety around food and eating.

“Throughout all of this treatment, Rupert has thankfully remained his chatty, bossy self. He’s taken great interest in all his medical procedures and his party trick is to recite his name band info - full name, date of birth, hospital number and allergies,” says Alice.

Rupert’s Fundraising Campaign

Rupert’s frontline treatment finishes in January 2021 and his end of treatment scans will confirm whether he is in remission.  His parents have made the decision not to pursue further treatment at this point, but haven’t ruled it out for the future.  High-risk neuroblastoma has a 50% chance of relapse, the treatment for which is particularly challenging.  They will be continuing to actively fundraise in order to be able to access every possible treatment option in the worst-case scenario.

How you can help

There are many ways you can help Rupert: by making a personal donation; by sharing his story on Facebook, holding a fundraising event; getting sponsored to take on a challenge.

To donate by text, send “RUPERT” followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won’t matter if you leave a space before the number, if you include a ‘£’ sign or whether you use upper or lower case.

Download our free Rupert resources below, to support your fundraising.

Sponsorship Form Campaign Poster Event Poster

You can make a donation via this page.

If you’d like to help to support Rupert’s campaign, please get in touch with the fundraising team on 0207 284 0800 and [email protected]

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