Just before his 2nd birthday little Ollie was diagnosed with high-risk neuroblastoma. Since then he has undergone invasive and intensive treatment, including lots of rounds of chemotherapy, high-dose chemotherapy, 12 hours of surgery, stem cell harvest, radiotherapy and numerous side effects from these treatments. He has endured so many blood transfusions, platelet transfusions, painkillers, antibiotics and so much more. Throughout all of the treatment, Ollie continued to smile and be happy to play with his toys. His scans showed that he was no evidence of disease (NED) at the end of treatment and throughout immunotherapy which finished in April 2020.

In July 2020 Ollie became ill and the family were given the devastating news that Ollie had relapsed. Following treatment to Ollie’s relapse neuroblastoma, Ollie is now NED again.

Ollie’s mum and dad, Lucy and Gary, are determined to do everything they can to give him the best possible chance of beating this awful disease. Thanks to your amazing support, Ollie will shortly begin to receive 8H9 treatment, which will hopefully prevent a further CNS relapse, at the Memorial Sloan Kettering Cancer Center in New York using funds already raised. Ollie is due to receive two cycles of 8H9 and then will return to the UK where the next step will be for the family to travel to Barcelona in the summer for cycles of Hu3f8 treatment which could cost around another £150,000.

Once Ollie has completed Hu3f8, the family hope he will be eligible to enrol on the Bivalent Vaccine clinical trial in New York later this year which aims to prevent the cancer from coming back and is showing some promising results in those patients who have suffered a relapse. The cost of the trial and all associated costs will cost around £200,000.

In order to give Ollie the best chance, his parents and his treating team believe that these three separate protocols are essential, but it could require up to another £400,000 for Ollie to access all three. Please help by donating to Ollie’s campaign to give him the best chance of beating this devastating disease.

I would like to raise as much money as possible to make sure that this option is available to them so I have decided to do a skydive in Cyprus, where I have been living for the last 3 1/2 years. Marie Lathwell