Neuroblastoma Parent Global Symposium 2020

On 6-7 November 2020 the inaugural Neuroblastoma Parent Global Symposium brought together families affected by neuroblastoma from around the world with those who work to treat, help and support them.

Presentations from 36 experts from Australia, North America, and Europe shared the latest information on biology, treatment, research, late effects, and psychosocial challenges surrounding a childhood cancer diagnosis. Over 750 parents, medical professionals, charity leaders, and industry representatives from 47 countries were able to view live presentations, panel sessions, and ask questions.

Families worldwide now have free access to information through 25 hours of recorded sessions which all can be viewed at www.nbparentsymposium.com.

International experts delivered sessions providing credible and reliable information on treatment and clinical trials, including current treatment strategies in Europe, North America and Australia, and some of the impacts of a childhood cancer diagnosis on the whole family.

A prestigious Clinical Steering Committee oversaw the development of the comprehensive program, and was chaired by Daniel Morgenstern, MD. CSC members were Ami Dasai, MD, Cormac Owens, MD, Juliet Grey, MA, MB, BS, PhD, Lucas Moreno, MD, PhD, Michelle Haber, BSc, PhD, Navin Pinto, MD, Steven DuBois, MD, MS, Thorsten Simon MD, and Toby Trahair, MD.

Ahead of the event Dr. Lucas Moreno, member of the Clinical Steering Committee, said of the Symposium, “I strongly encourage families from all over the world to join this unique event. The event includes presentations of new advances in treatment, educational sessions, talks covering psychosocial aspects and how to facilitate access to innovative medicines.”

Solving Kids’ Cancer UK has collaborated with Children’s Neuroblastoma Cancer Foundation and Solving Kids’ Cancer (US) (two charities with whom we have a history of collaboration) on this world-wide event - the first of its kind for the international neuroblastoma community.

We are grateful to GRC World Forums, Y-mAbs Therapeutics, THANC Foundation, Sanofi and United Therapeutics for their support to help make this event possible.

About the Symposium Partners

Children’s Neuroblastoma Cancer Foundation

The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources.

Comprised of families just like yours, we are committed to finding a cure for neuroblastoma through research, education, awareness and advocacy. Visit www.cncfhope.org to find out more about the work of CNCF.

Solving Kids’ Cancer

We are a parent-led charity, our vision is for future where no child dies of neuroblastoma or suffers due to its treatment.

As part of our mission Solving Kids’ Cancer initiates and funds innovative clinical research to provide children with the best and most promising new therapies available closer to home. Our research focus is on clinical trials, seeking to explore new ways of treating neuroblastoma, providing hope and options for children and their families now as well as building on the scientific understanding of this disease for children in the future.

Solving Kids’ Cancer US

Solving Kids’ Cancer is not just our name, it’s our mission. We focus on aggressive childhood cancers with low survival rates - because Every Kid Deserves to Grow Up.

Solving Kids' Cancer helps accelerate new clinical trials of next-generation treatments including immunotherapy, biomarker-based targeted agents, and new combination therapies through research advocacy, with an understanding of the childhood cancer research landscape and current unmet needs to wisely invest in innovative projects.  Visit www.solvingkidcancer.org to learn more.

Latest

73 mile cycle from Brecon Mountain Railway to Upper Brynamman

To rise funds to support a local family to get the treatment for their little boy,
LEJOG for Little Joseph

I am cycling 960 miles over 9 days from Lands End to John 'O' Groats starting August 22nd 2021
Áine McCarthy
WhisperClaims Climbs a Mountain for Peter

We'll be climbing stairs to the height of Ben Nevis to raise money for Peter's Neuroblastoma treatment.

2019 Neuroblastoma Parent Conference

2019 Solving Kids’ Cancer Neuroblastoma Parent Education Conference.
2018 Neuroblastoma Parent Education Conference

Our 2018 conference offered a concurrent session focusing on ways to deal with and manage the long-term side effects of neuroblastoma.
2017 Neuroblastoma Parent Education Conference

Our 6th Annual Neuroblastoma Parent Education Conference – ‘Understanding the Landscape of Neuroblastoma Research’
2016 Neuroblastoma Parent Education Conference

Our 5th Annual Neuroblastoma Parent Education Conference was held at Latimer Place in Chesham
2015 Neuroblastoma Parent Education Conference

Our 4th Annual Parent Conference was again held at Latimer Place, Chesham

Chloe’s Journey

Chloe was diagnosed with high-risk neuroblastoma at just 2 years old. Chloe is now 10 years old and in February 2020 her parents were given the devastating news that she had relapsed for the second time with her disease progressing in February 2021.
Flora's Campaign

In January 2021 Flora was diagnosed with Autism Spectrum Disorder, and just three months later her parents were given the devastating news she had high-risk neuroblastoma.
Peter's Campaign

11-year-old Peter was diagnosed with neuroblastoma in early 2019. Devastatingly he relapsed in August 2020 after being clear of disease for 6 months. His family are fundraising for further treatment either to get Peter back into remission or to try and keep the cancer away if his treatment goes to plan. This could cost hundreds of thousands of pounds.
Lily-Mae, Ireland’s Tiny Dancer, supports Solving Kids’ Cancer

Lily-Mae from Galway, Ireland will be celebrating her 12th birthday this April, but for her parents Judith and Leighton every day is a blessing.
Joseph's Campaign

Joseph was diagnosed with high-risk neuroblastoma in April 2021 at just three years old. His family are fundraising for further treatment, either to get their son into remission or to try and keep the cancer away if his frontline treatment does go to plan. This could cost hundreds of thousands of pounds.
Ollie’s Appeal

Ollie’s mum and dad are determined to do everything they can to give him the best possible chance of beating neuroblastoma.
Vivianna's Campaign

Vivianna, or 'Vivi', was diagnosed with high-risk neuroblastoma, an aggressive childhood cancer, at just two years old. Her family are fundraising for further treatment, either to get their daughter into remission or to try and keep the cancer away if her frontline treatment does go to plan. This could cost hundreds of thousands of pounds.
Henry's Urgent Appeal

Henry has high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis. His family are appealing for your help to raise £163,000 by January 2021.
Poppy's Campaign

Poppy was diagnosed with high-risk neuroblastoma at just four years old. Her family are fundraising for further treatment, either to get their daughter into remission or to try and keep the cancer away if her frontline treatment does go to plan.
Nellie-Rose's Campaign

Nellie-Rose is battling a disease no child should have to. She has high-risk neuroblastoma that has a 40-50% chance of long-term survival at diagnosis.