Neuroblastoma Parent Global Symposium 2021

The Neuroblastoma Parent Global Symposium - NPGS2021 - is returning this year, on the 5th and 6th of November.

You can register your interest in attending now at nbparentsymposium.com

Hosted online over two days, this FREE event will provide valuable content for families, neuroblastoma survivors, clinicians and other healthcare professionals, charitable organisations and researchers.

The event programme will include live and pre-recorded sessions, presentations from internationally renowned experts, networking opportunities, specialised conversation rooms and parent-driven Q&A sessions. Including:

Information for newly diagnosed families
Overview of international clinical trial landscape
Drug development and emerging research
Supportive care management
Survivorship

This was an absolutely fantastic event, very informative and excellently run. As a family member of someone with neuroblastoma, it was great to hear of the newer treatment options and hear survivor stories. Rosie, NPGS2020 Attendee

Solving Kids’ Cancer UK, the Children’s Neuroblastoma Cancer Foundation, and Solving Kids’ Cancer (US) have a long history of collaboration and partnership, as well as a wealth of experience in creating and hosting events to meet parent needs.

As neuroblastoma support and research charities we advocate passionately for children and families affected by neuroblastoma. The Neuroblastoma Parent Global Symposium 2021 will enable families, and all those who work to treat, help and support them, to access vital information, networking opportunities and share experience.

This event highlighted how well connected the oncology world is and that we are fortunate to have so many amazing experts around the globe searching for better treatments/cures for this devastating disease. Adam, NPGS2020 Attendee

We are proud to be working with our supporters GRC World Forums who are donating the event platform and technical expertise.

About the organisers

Solving Kids’ Cancer UK

Solving Kids’ Cancer UK is a parent-led charity, our vision is a future where no child dies of neuroblastoma or suffers due to its treatment. We provide emotional and practical support to families and our research focus is on clinical trials, seeking to explore new ways of treating neuroblastoma, providing hope and options for children and their families now and in the future.

Children’s Neuroblastoma Cancer Foundation

The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources.

Comprised of families just like yours, we are committed to finding a cure for neuroblastoma through research, education, awareness and advocacy. Visit www.cncfhope.org to find out more about the work of CNCF.

Solving Kids’ Cancer (US)

Solving Kids’ Cancer is not just our name, it’s our mission. We focus on aggressive childhood cancers with low survival rates—because Every Kid Deserves to Grow Up. Solving Kids' Cancer (SKC) helps accelerate clinical trials of next-generation treatments with an understanding of the global childhood cancer research landscape and current unmet needs. 

Latest

YSC Channel Swim for Joseph

The members of Ystradgynlais Swimming Club aged 6 - 15 plan to swim the length of the British channel (22 miles) between them in just 2 hours.
George's Story

Around 100 children are diagnosed with neuroblastoma every year in the UK, with nearly half categorised as 'high-risk', a diagnosis that's even more challenging to treat. George was diagnosed with high-risk neuroblastoma at 17 years old in January 2020. He is currently enrolled on the Lorlatinib trial which is showing positive results so far.
70 miles in 7 days

Being a mam myself Joseph’s story has touched my heart.
Mikey's Story

Around 100 children are diagnosed with neuroblastoma every year in the UK, with nearly half categorised as 'high-risk', a diagnosis that's even more challenging to treat. Mikey was diagnosed at just 20 months old, now 5 years old he has completed the Bivalent vaccine trial and started year 1 at school.

Neuroblastoma Parent Global Symposium 2020

Neuroblastoma Parent Global Symposium 2020
2019 Neuroblastoma Parent Conference

2019 Solving Kids’ Cancer Neuroblastoma Parent Education Conference.
2018 Neuroblastoma Parent Education Conference

Our 2018 conference offered a concurrent session focusing on ways to deal with and manage the long-term side effects of neuroblastoma.
2017 Neuroblastoma Parent Education Conference

Our 6th Annual Neuroblastoma Parent Education Conference – ‘Understanding the Landscape of Neuroblastoma Research’
2016 Neuroblastoma Parent Education Conference

Our 5th Annual Neuroblastoma Parent Education Conference was held at Latimer Place in Chesham
2015 Neuroblastoma Parent Education Conference

Our 4th Annual Parent Conference was again held at Latimer Place, Chesham

Chloe’s Journey

Chloe was diagnosed with high-risk neuroblastoma at just 2 years old. Chloe is now 10 years old and in February 2020 her parents were given the devastating news that she had relapsed for the second time with her disease progressing in February 2021.
Joseph's Campaign

Joseph was diagnosed with high-risk neuroblastoma in April 2021 at just three years old. His family are fundraising for further treatment, either to get their son into remission or to try and keep the cancer away if his frontline treatment does go to plan. This could cost hundreds of thousands of pounds.
Flora's Campaign

In January 2021 Flora was diagnosed with Autism Spectrum Disorder, and just three months later her parents were given the devastating news she had high-risk neuroblastoma.
Peter's Campaign

11-year-old Peter was diagnosed with neuroblastoma in early 2019. Devastatingly he relapsed in August 2020 after being clear of disease for 6 months. His family are fundraising for further treatment either to get Peter back into remission or to try and keep the cancer away if his treatment goes to plan. This could cost hundreds of thousands of pounds.
Lily-Mae, Ireland’s Tiny Dancer, supports Solving Kids’ Cancer

Lily-Mae from Galway, Ireland will be celebrating her 12th birthday this April, but for her parents Judith and Leighton every day is a blessing.
Ollie’s Appeal

Ollie's family shared the devastating news that their beautiful boy passed away on Sunday 18th July 2021.
Henry's Urgent Appeal

Henry has high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis. His family are appealing for your help to raise £163,000 by January 2021.
Nellie-Rose's Campaign

Nellie-Rose is battling a disease no child should have to. She has high-risk neuroblastoma that has a 40-50% chance of long-term survival at diagnosis.
Poppy's Campaign

Poppy was diagnosed with high-risk neuroblastoma at just four years old. Her family are fundraising for further treatment, either to get their daughter into remission or to try and keep the cancer away if her frontline treatment does go to plan.
What is neuroblastoma?

Neuroblastoma is a rare and aggressive childhood cancer that affects around 100 children each year in the UK. It has one of the lowest survival rates.