How can I get support to access treatment not available on the NHS?
Some families explore treatment options that are not routinely available on the NHS, such as certain clinical trials or private treatments. This may be with the aim of trying to help their child stay in remission after frontline or other therapy, or because the cancer has returned. Such decisions about treatment for your child should be made in partnership with your child’s clinical team.
Looking into treatment privately in the UK or overseas can feel complex, especially when it involves considerable cost, unfamiliar healthcare systems and practical implications.
Support from Solving Kids’ Cancer UK
Solving Kids’ Cancer UK can help you navigate accessing treatment not available through the NHS by providing emotional and practical support. To read a full description of the support available, see our dedicated service page:
Support accessing treatment not available on the NHS
Solving Kids’ Cancer UK can also support you to fundraise to access treatment not available on the NHS by hosting a dedicated fundraising campaign on your family’s behalf. For more information, visit our service page:
Fundraising for treatment not available on the NHS
Our approach
Solving Kids’ Cancer UK does not encourage or promote access to treatment outside of the NHS. We also do not provide medical advice, determine treatment plans, or make clinical recommendations. All medical decisions, including whether treatments outside of the NHS should be considered and whether travel overseas is appropriate, should be made with your child’s UK clinical team. However, we understand why some families explore and access treatment that is not available on the NHS, and we support families who choose this path working in partnership with their child’s clinical team.
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Need to speak to someone?Get in touch with our Family Support Team.
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Help and supportHead to our Help and Support homepage to explore how we can support you.
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Treatment for neuroblastomaRead more about the different types of treatment for neuroblastoma.
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Clinical trials for neuroblastomaLearn more about clinical trials as part of treatment for neuroblastoma.
We are here to help
If you’re exploring how to access treatment not available on the NHS, our Family Support Team can talk through what this may involve and support you in the way that feels right for your family.
Other questions you may have
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What support is there to help me make treatment decisions?
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Can I get a second opinion about my child’s diagnosis or treatment?
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Should I tell my consultant that I want a second opinion?
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How do I refer my child to the National Neuroblastoma Advisory Panel?
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Should I be fundraising for additional treatment for neuroblastoma?
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