Newly diagnosed
When your child is diagnosed with neuroblastoma, it can be difficult to know where to turn. Explore information about neuroblastoma, treatment, and the support available to help your family.
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Personalised family supportIf your child has been diagnosed with neuroblastoma, our Family Support Team is here to provide emotional support, practical guidance and trusted information.
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About neuroblastomaLearn more about neuroblastoma, including symptoms, diagnosis and treatment.
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Financial supportFind information about grants and other financial support to help with the financial impact of a neuroblastoma diagnosis.
Support by risk group
If your child has been diagnosed with neuroblastoma, select the risk group below to find information, guidance and support relevant to your situation.
Questions you may have
You may have lots of questions about neuroblastoma. Here you’ll find answers to some of the most common questions families ask.
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About neuroblastoma -
Support -
Access to non-NHS treatment
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Treatment
Useful videos
Explore videos designed to help families understand neuroblastoma, treatment, clinical trials, and coping with the diagnosis and care.
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VideoWhat is neuroblastoma?
An introduction to neuroblastoma from leading expert Dr Ro Bagatell, covering diagnosis, risk classification, treatment options, and current research.
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VideoFinding trusted information
Hear from parents and healthcare professionals about finding trusted neuroblastoma information and avoiding misinformation.
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VideoNavigating diagnosis as a family
Exploring how families adapt to childhood cancer, with support, self-care, and peer connections.
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VideoUnderstanding current frontline treatment
An overview of current high-risk neuroblastoma treatment and key differences between COG and SIOPEN.
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VideoUnderstanding and managing fatigue
Practical advice from occupational therapist Joanna Hunt to help families understand and manage fatigue using the Spoonie method.
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VideoPTSD and Anxiety
Understanding anxiety and post-traumatic stress in children and parents after childhood cancer.
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VideoCoping as a family
Guidance on coping as a family and accessing support after a neuroblastoma diagnosis.
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VideoPaediatric medical trauma
Understanding and addressing medical trauma in children and families, with practical strategies to support recovery.
Other ways we can help
Explore helpful information and the support available to you and your family.
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Financial support
Information about financial support, grants and helpful resources for families affected by neuroblastoma.
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Treatment for neuroblastoma
Learn about the different types of treatment for neuroblastoma.
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Neuroblastoma Parent Symposium
A chance for families to learn from and connect with neuroblastoma experts.
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Family Days
Relaxed and inclusive events bringing together families affected by neuroblastoma for fun, connection and support.
You are not alone
"Solving Kids’ Cancer UK held our hands when the rest of the world felt like it was stood still."
– Neuroblastoma family