Can you connect me to other families in my situation?

Yes. Solving Kids’ Cancer UK can help connect you with other families who understand what you are going through. Our Family Support Team can introduce you to parents or carers who are in a similar situation - whether your child is newly diagnosed, in treatment, post treatment, or you are navigating bereavement. 

Support from Solving Kids’ Cancer UK 

One-to-one family connections

Our Family Support Team can connect you with another parent or carer whose experience is similar to yours. This can help you feel less alone, share practical advice, and speak openly with someone who understands the realities of neuroblastoma.

If you would like to be connected with another family, please contact our Family Support Team. 

Online drop-in sessions

Our Family Support Team runs regular online drop-in sessions for parents and carers. These peer-to-peer groups offer a safe and understanding space to connect, share experiences, ask questions, and receive support from others who understand the journey. We currently offer two groups: 

• For families up to 5 years post treatment 

• For families more than 5 years post treatment                                                                       

Coaching programmes

We offer dedicated coaching programmes for parents that provide tailored emotional and practical support, helping parents navigate life after treatment or loss. We currently offer two programmes:

• Coaching programme for post‑treatment support for families 
• Coaching programme for support in bereavement for families 

External support groups 

Neuroblastoma-specific Facebook groups

Below are two of the neuroblastoma-related Facebook groups we are aware of. These groups are run independently and are not administered, moderated or endorsed by Solving Kids' Cancer UK. As such, we cannot vouch for the accuracy, completeness or currency of information shared by group members.

Facebook groups may bring together families at different stages of their journey and from different countries. Therefore, discussions may cover a wide range of topics, including diagnosis, treatment, relapse, late effects, palliative care and bereavement. Additionally, information shared may reflect different treatment approaches, healthcare systems and standards of care in different countries. 

We encourage families to be mindful of this when deciding whether and when to join a group, how much to engage, and what information is relevant to their family and situation. 

If you have questions about your child's diagnosis, treatment or care, always speak to your child's treating team. Our Family Support Team can also help you understand or sense-check information you have read online, share impartial information and guidance, and support you to identify questions you may wish to raise with your child's treating team.

• Neuroblastoma Support Group – You Are Not Alone Ask Away 
• Neuroblastoma Network (for survivors and/or their families)

Not sure which type of connection is right for you? 

If you’re unsure whether a one‑to‑one connection, a group session, or a coaching programme would be most helpful, our Family Support Team can talk through the options and help you choose the support that feels right.

Page last updated: July 28, 2026