What is the National Neuroblastoma Advisory Panel?

The National Neuroblastoma Advisory Panel (NNAP) is a national group of expert clinicians who work together to review complex or unusual cases of neuroblastoma. The panel brings together specialists from across the UK, including: 

• paediatric oncology consultants 

• surgeons 

• radiologists and imaging specialists 

• pathologists 

• radiotherapy experts 

• senior nurses 

• researchers involved in clinical trials and emerging treatments 

These experts meet regularly twice a month to review cases that are referred by a child’s treating consultant. During the meeting, they consider information such as: 

• scans and imaging 

• test results and pathology reports 

• the child’s treatment history 

• how the cancer is responding 

• upcoming decisions about treatment plans 

What does the National Neuroblastoma Advisory Panel do? 

The purpose of the panel is to ensure each child benefits from the most up‑to‑date clinical knowledge and experience available across the UK. The panel considers different treatment approaches, discusses potential options, and provides recommendations to the child’s consultant. 

Does the National Neuroblastoma Advisory Panel replace my child’s medical team? 

No. The NNAP’s role is advisory. Your child’s consultant remains responsible for their care and will: 

• explain why the case was referred 

• share the panel’s recommendations 

• talk through next steps and what they mean for your child 

Why might a case be referred? 

A consultant may refer a child’s case to the panel when: 

• the cancer is behaving differently than expected 

• there are difficult treatment decisions to make 

• the child has relapsed or refractory disease 

• specialist surgical or radiotherapy input is needed 

• there is uncertainty about the best next step 

• they have been asked to do so by the child’s parent or carer 

The panel helps ensure decisions are made with the broadest possible expertise.