Are there neuroblastoma parent support groups?
Yes, there are neuroblastoma parent support groups available, both through Solving Kids’ Cancer UK and externally.
Our support groups and programmes
Coaching programmes
We offer dedicated coaching programmes for parents that provide tailored emotional and practical support, helping parents navigate life after treatment or loss. We currently offer two programmes:
Online drop-in sessions
Our Family Support Team runs regular online post-treatment drop-in sessions for parents and carers. These peer-to-peer groups offer a safe and understanding space to connect, share experiences, ask questions, and receive support from others who understand the journey. We currently offer two groups:
- For families up to 5 years post treatment
- For families more than 5 years post treatment
External support groups
Neuroblastoma-specific Facebook groups
Below are two of the neuroblastoma-related Facebook groups we are aware of. These groups are run independently and are not administered, moderated or endorsed by Solving Kids' Cancer UK. As such, we cannot vouch for the accuracy, completeness or currency of information shared by group members.
Facebook groups may bring together families at different stages of their journey and from different countries. Therefore, discussions may cover a wide range of topics, including diagnosis, treatment, relapse, late effects, palliative care and bereavement. Additionally, information shared may reflect different treatment approaches, healthcare systems and standards of care in different countries.
We encourage families to be mindful of this when deciding whether and when to join a group, how much to engage, and what information is relevant to their family and situation.
If you have questions about your child's diagnosis, treatment or care, always speak to your child's treating team. Our Family Support Team can also help you understand or sense-check information you have read online, share impartial information and guidance, and support you to identify questions you may wish to raise with your child's treating team.
- Neuroblastoma Support Group – You Are Not Alone Ask Away
- Neuroblastoma Network (for survivors and/or their families)
Additional support
Making connections with other families can be an important part of coping and finding practical advice.
Read more about connecting with other families in your situation.
Some families also find it useful to seek professional support such as counselling.
Read more about accessing counselling for you.
Read more about accessing counselling for your child.
Page last updated: July 28, 2026
Support for your family
Our Family Support Team is here to help if you need support or impartial guidance.
