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What support is there to help me make treatment decisions?

Making treatment decisions for your child can feel overwhelming, particularly if your child has relapsed or has refractory neuroblastoma. It is normal to feel unsure, to have questions, or to need time and support to think things through. 

Support from Solving Kids’ Cancer UK 

Our Family Support Team can provide emotional and practical support to help you navigate treatment decisions. This support is personalised and responsive to your family’s needs, and may include: 

  • talking things through at your pace 
  • helping you make sense of complex or conflicting information 
  • supporting you to prepare for conversations with your child’s medical team 
  • offering emotional support as decisions are considered and revisited over time 

Our support is designed to complement and not replace discussions with your child’s medical team. 

Redmapp: a decision‑support tool for families 

Redmapp is a free, online resource designed to support parents who are facing complex treatment decisions for their child. 

Developed by clinical experts and informed by families with lived experience, Redmapp offers: 

  • clear, trustworthy information about treatment options 
  • personal stories from other parents 
  • guidance from psychologists and healthcare professionals 
  • tools to help you reflect on your values, priorities and questions 

Redmapp can be used alongside support from your medical team and our family support services. Visit the Redmapp site.

Support for your family

Our Family Support Team is here to help if you need impartial guidance or simply want to talk things through.

Solving Kids' Cancer UK's Family Support Advocate talking to parents at a charity conference

Other questions you may have