What support is there to help me make treatment decisions?
Making treatment decisions for your child can feel overwhelming, particularly if your child has relapsed or has refractory neuroblastoma. It is normal to feel unsure, to have questions, or to need time and support to think things through.
Support from Solving Kids’ Cancer UK
Our Family Support Team can provide emotional and practical support to help you navigate treatment decisions. This support is personalised and responsive to your family’s needs, and may include:
- talking things through at your pace
- helping you make sense of complex or conflicting information
- supporting you to prepare for conversations with your child’s medical team
- offering emotional support as decisions are considered and revisited over time
Our support is designed to complement and not replace discussions with your child’s medical team.
Redmapp: a decision‑support tool for families
Redmapp is a free, online resource designed to support parents who are facing complex treatment decisions for their child.
Developed by clinical experts and informed by families with lived experience, Redmapp offers:
- clear, trustworthy information about treatment options
- personal stories from other parents
- guidance from psychologists and healthcare professionals
- tools to help you reflect on your values, priorities and questions
Redmapp can be used alongside support from your medical team and our family support services. Visit the Redmapp site.
-
Need to speak with someone?Get in touch with our Family Support Team.
-
Help and supportHead to our Help and Support homepage to see how we can support you.
-
Clinical trialsLearn more about clinical trials as part of treatment for neuroblastoma
-
Treatment for neuroblastomaRead more about the different types of treatment for neuroblastoma
Support for your family
Our Family Support Team is here to help if you need impartial guidance or simply want to talk things through.
Other questions you may have
-
-
Should I enroll my child on a clinical trial for neuroblastoma?
-
Can I change my mind about enrolling my child on a clinical trial?
-
What happens if my child doesn’t respond to frontline treatment?
-
Should I tell my consultant that I want a second opinion?
-
Can I get a second opinion about my child’s diagnosis?
-
How can we cope with neuroblastoma as a family?
-