High-risk neuroblastoma

When your family is affected by neuroblastoma, our Family Support Team is here to provide emotional support, practical guidance and trusted information.

Information about neuroblastoma, including symptoms, diagnosis, and treatment. 

Read stories of children and young people now in remission and enjoying life after treatment.

An introduction to neuroblastoma from leading expert Dr Ro Bagatell, covering diagnosis, risk classification, treatment options, and current research.

Hear from parents and healthcare professionals about finding trusted neuroblastoma information and avoiding misinformation.

Exploring how families adapt to childhood cancer, with support, self-care, and peer connections.

Overview of how high-risk neuroblastoma is treated in the US and Europe, including current frontline approaches through COG and SIOPEN.

Leading experts explore precision medicine, clinical trials, and new strategies to improve neuroblastoma treatment outcomes. 

Practical advice from occupational therapist Joanna Hunt to help families understand and manage fatigue using the Spoonie method.

Practical advice on managing pain during childhood cancer treatment, including strategies for procedures and guidance for parents and carers.  

Understanding anxiety and post-traumatic stress in children and parents after childhood cancer.

Understanding and addressing medical trauma in children and families, with practical strategies to support recovery.

Access emotional support, practical guidance and trusted information from our Family Support Team.

Read about the different types of treatment for neuroblastoma, including the side effects.

Learn about clinical trials as part of treatment for neuroblastoma and explore related guidance.

Learn about maintenance therapies for neuroblastoma and explore guidance to support decision-making.

Information, practical guidance and emotional support for families considering treatment options outside the NHS.

Guidance for families considering fundraising through Solving Kids’ Cancer UK for treatment not available on the NHS.

Explore information about treatment, clinical trials and the support available to help your family if your child has relapsed.

Guidance to help your family navigate treatment decisions and next steps if your child's disease is not responding to treatment.

A chance for families to learn from and connect with neuroblastoma experts.

Relaxed and inclusive events bringing together families affected by neuroblastoma for fun, connection and support.