Refractory neuroblastoma

When your family is affected by neuroblastoma, our Family Support Team is here with emotional support, practical guidance and trusted information.

Find information about clinical trials for neuroblastoma, and explore related guidance. 

This page provides information and guidance to help you navigate treatment decisions. 

Information for parents, carers and families of children whose neuroblastoma has come back or not responded to treatment.

Outlines the role of the panel in the UK, including how it brings together expertise to discuss and advise on complex cases.

An overview of clinical trials and new treatments for relapsed and refractory neuroblastoma. 

Explores care for relapsed and refractory neuroblastoma, alongside reflections on hope from a childhood cancer advocate. 

An introduction to CAR T‑cell therapy for neuroblastoma, including how it works and emerging research. 

Explore the Bambino Gesù CAR T-cell trial in Rome and its expansion across Europe.

A simple overview of the MINT study and new approaches being explored for treating high‑risk neuroblastoma.

Learn about the BEACON2 trial for relapsed neuroblastoma, including its aims and potential side effects.

Overview the role of anti-GD2 antibody therapy in the treatment of neuroblastoma, including BEACON Immuno and MiNivAN clinical trials.

Practical advice from occupational therapist Joanna Hunt to help families understand and manage fatigue using the Spoonie method.

Understanding anxiety and post-traumatic stress in children and parents after childhood cancer.

Understanding and addressing medical trauma in children and families, with practical strategies to support recovery.

Read about the different types of treatment for neuroblastoma.

Learn about clinical trials as part of treatment for neuroblastoma.

A chance for families to learn from and connect with neuroblastoma experts.

Learn about the financial support and resources available to you.

Information, practical guidance and emotional support for families considering treatment options outside the NHS.

Guidance for families considering fundraising through Solving Kids’ Cancer UK for treatment not available on the NHS.

Relaxed and inclusive events bringing together families affected by neuroblastoma for fun, connection and support.