Relapsed neuroblastoma
If your child’s neuroblastoma has returned, it can be difficult to know what comes next. Explore information about treatment, clinical trials and the support available to help your family.
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Personalised family supportWhen your family is affected by neuroblastoma, our Family Support Team is here with emotional support, practical guidance and trusted information.
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Clinical trials for neuroblastomaFind information about clinical trials for neuroblastoma, including eligibility, how they work and what participation may involve.
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Support with treatment decisionsWhen faced with complex treatment decisions after relapse, this page offers guidance and information to help you consider your options.
Has you child relapsed?
Our Family Support Team is here to support your family with compassion, guidance and trusted information.
Questions you may have
You may have lots of questions if your child’s neuroblastoma has returned. Here you’ll find answers to some common questions families ask.
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What does it mean when my child has relapsed neuroblastoma?
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What is the treatment for relapsed neuroblastoma?
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What support is there to help me make treatment decisions?
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Can I get a second opinion about my child’s diagnosis?
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What is the National Neuroblastoma Advisory Panel?
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How do I refer my child to the National Neuroblastoma Advisory Panel?
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What is a clinical trial?
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Are there clinical trials available for relapsed neuroblastoma?
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Should I enroll my child on a clinical trial for neuroblastoma?
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What are the survival rates for relapsed neuroblastoma?
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Useful resources
Explore videos and resources about relapsed neuroblastoma, including information on clinical trials, emerging treatments and support for families.
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GuideCCLG Relapse and Refractory Neuroblastoma Guide
Information for parents, carers and families of children whose neuroblastoma has come back or not responded to treatment.
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VideoIf treatment doesn't go to plan
Explores care for relapsed and refractory neuroblastoma, alongside reflections on hope from a childhood cancer advocate.
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VideoTreating relapsed and refractory disease
An overview of clinical trials and new treatments for relapsed and refractory neuroblastoma.
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VideoNeuroblastoma Advisory Panel
Outlines the role of the panel in the UK, including how it brings together expertise to discuss and advise on complex cases.
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VideoThe BEACON2 trial
Learn about the BEACON2 trial for relapsed neuroblastoma, including its aims and potential side effects.
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VideoThe MINT Study
A simple overview of the MINT study and new approaches being explored for treating high‑risk neuroblastoma.
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VideoCAR T-cell therapy
An introduction to CAR T‑cell therapy for neuroblastoma, including how it works and emerging research.
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VideoAnti-GD2 antibody therapy
Overview the role of anti-GD2 antibody therapy in the treatment of neuroblastoma, including BEACON Immuno and MiNivAN clinical trials.
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VideoPain management
Practical advice on managing pain during treatment, including strategies for procedures and guidance for parents and carers.
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VideoUnderstanding and managing fatigue
Practical advice from occupational therapist Joanna Hunt to help families understand and manage fatigue using the Spoonie method.
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VideoPTSD and Anxiety
Understanding anxiety and post-traumatic stress in children and parents after childhood cancer.
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VideoPaediatric medical trauma
Understanding and addressing medical trauma in children and families, with practical strategies to support recovery.
Other ways we can help
Explore helpful information and the support available to you and your family.
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Treatment for neuroblastoma
Read about the different types of treatment for neuroblastoma.
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Clinical trials for neuroblastoma
Learn more about clinical trials as part of treatment for neuroblastoma.
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Neuroblastoma Parent Symposium
A chance for families to learn from and connect with neuroblastoma experts.
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Accessing treatment outside the NHS
Information, practical guidance and emotional support for families considering treatment options outside the NHS.
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Fundraising for treatment
Guidance for families considering fundraising through Solving Kids’ Cancer UK for treatment not available on the NHS.
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Financial support
Find information about grants and other financial support available to you.
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Family Days
Relaxed and inclusive events bringing together families affected by neuroblastoma for fun, connection and support.