Little girl eating strawberries on a hospital bedNellie-Rose is smart, funny and full of life. Her infectious personality brings joy and happiness to everyone around her and despite all she is going through, she continues to always have a smile on her face.

Four-year-old Nellie-Rose adores spending time with her family, especially her Nanny. She loves going to nursery and seeing all her friends and teachers. Sadly, since treatment started Nellie-Rose has not been able to return to her nursery and is missing socialising with her friends.

Nellie-Rose is battling a disease no child should have to. She has high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis.

Her family are appealing for your help to raise £182,000 by June 2021, so Nellie Rose can receive a clinical trial in New York that aims to stop her neuroblastoma from coming back.

Nellie-Rose’s Story

In February 2020, Nellie-Rose’s mum Leighann took her to A&E after she struggled using her right leg. Scans initially came back clear, and the family were advised to return the next day for blood tests. The next day she was referred to the Orthopaedic team and booked in for an MRI.

Nellie-Rose had her first MRI in March at Pembury Hospital in Tunbridge Wells, where results showed lesions on her hips and her parents were given a possible diagnosis of Leukaemia. A further ultrasound at Maidstone Hospital revealed a tumour in her stomach, and doctors confirmed she had Stage 4 cancer.

Nellie-Rose underwent a full-body CT scan, had a Hickman line inserted into her chest, and then biopsies taken. 

“I wasn’t ready to see tubes from my tiny daughter’s chest. I was in shock and disbelief at what was happening around me,” says Leighann.

On the 30th March 2020, Nellie-Rose’s parents were given the devastating news that their gorgeous and brave daughter was diagnosed with neuroblastoma.Little girl smiling outside

Treatment

Nellie-Rose has already endured so much and has several months of immunotherapy left to complete.

“We’ve just completed induction chemo, in the hope of shrinking the tumour back. That’s just the start. The months ahead are going to be harsh and scary.” Says Leighann.

She has endured induction chemotherapy, surgery, high-dose chemotherapy, a stem cell harvest and radiotherapy and is currently receiving immunotherapy treatment.

Nellie-Rose’s Fundraising Campaign

Nellie-Rose’s parents are fundraising so that she can access the Bivalent Vaccine clinical trial in New York once frontline treatment is completed in June 2021.


The strength that Nellie has shown since her diagnosis is nothing short of inspirational and way beyond her years!”

How you can help

There are many ways you can help Nellie-Rose: by making a personal donation; by sharing her story on social media; holding a fundraising event; getting sponsored to take on a challenge.

Download our free Nellie-Rose resources below, to support your fundraising.

Sponsorship Form   Campaign Poster   Event Poster

To donate by text, send “NELLIEROSE” followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won’t matter if you leave a space before the number, if you include a ‘£’ sign or whether you use upper or lower case.

If you’d like to help support Nellie-Rose’s campaign, please get in touch with the fundraising team on 0207 284 0800 and [email protected]