Ashlee's campaign

Ashlee is a shy but thoughtful young lady. Ashlee was diagnosed with high-risk neuroblastoma at the age of six but relapsed for the second time in November 2018, which devastated her family. Once a child relapses, their chances of long-term survival drop drastically to less than one in ten. 

Thanks to an incredible community of support, Ashlee’s campaign raised the funds needed for her to start the bivalent vaccine clinical trial in New York in December 2020, to try to keep her cancer away. 

Ashlee’s campaign remains open in case she needs potentially life-saving treatment in the future not available through the NHS, which could cost hundreds of thousands of pounds. 

Ashlee’s story 

In February 2013, Ashlee’s mum, Lisa took her to the GP as for the past few months, she had complained on and off about abdominal pain and an ache down her legs. Initially, it was thought her abdominal pain may be due to food intolerance but one evening, screaming in pain, Ashlee was taken to A&E. 

She was kept in hospital for a week with suspected appendicitis before being moved to Yorkhill Hospital in Glasgow where she underwent various tests and scans. 

Ashlee’s parents were not convinced her symptoms were due to food intolerances but were shocked to hear a diagnosis of stage 4 high-risk neuroblastoma, a disease they had never heard of.  

Treatment so far 

Ashlee’s treatment began and she endured a year of chemotherapy including Rapid COJEC, TVD and then the Beacon trial. In January 2014, surgeons managed to remove 100% of her abdominal tumour and she went on to receive a stem cell transplant, followed by six months of immunotherapy. 

By December 2014, Ashlee had completed her treatment of radiotherapy and was finally free of disease. 

In July 2016, the family were devastated when routine scans revealed Ashlee had relapsed. She started chemotherapy again and lost her lovely hair all over again. She then received MIBG therapy at UCLH, which worked well on Ashlee’s relapse spot in her shoulder. She then had to have further chemotherapy to clear disease in her bone marrow and the family chose to do a maintenance treatment of Retinoic acid for six cycles up until July 2018. 

In November 2018, routine scans picked up another relapse, showing disease in Ashlee’s shoulder again and a few other little spots in her femur. 

Thankfully, following even more chemotherapy, Ashlee's scans showed no active disease.  

Ashlee travelled to the US and began the vaccine trial in March 2020 in the hope of helping keep her cancer away. Sadly, just before the 5th vaccine was due, re-assessment scans showed disease again in the shoulder. This was treated with radiotherapy and chemotherapy at Ashlee's home treating centre. Once back in remission, Ashlee was able to start the vaccine trial again in late 2020 and by December 2021 had completed the trial with clear scans. Follow Ashlee's story on social media.

_{Solving Kids' Cancer UK's children's fundraising campaigns} 

_{Funds raised will go towards helping Ashlee and her family. If Ashlee no longer needs the funds or is in remission five years post the end of successful treatment, the funds will be used to support other children and families affected by neuroblastoma through our activities. For children with high-risk neuroblastoma, like Ashlee, the survival rate is much lower than other childhood cancers. Upon relapse, this rate reduces even further.}