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Data Manager

Study name Data Manager
Study type Funded role
Principal investigator(s) Dr Sabine Taschner-Mandl, Dr Ulrike Pötschger, Dr Gudrun Schleiermacher
Institutions Children's Cancer Research Institute (CCRI), Vienna, Austria
Partners N/A
Total awarded €30,000
Solving Kids’ Cancer UK contribution €30,000

About the role

Solving Kids' Cancer UK is funding a dedicated Data Manager to help unlock one of the world's largest collections of clinical and biological data from children with high-risk neuroblastoma. 

Over the last 20 years, more than 3,500 children have taken part in the HR-NBL1/SIOPEN clinical trial for high-risk neuroblastoma. The information gathered from these children has already helped improve treatment, but it could also hold important clues that lead to even better therapies in the future.  

Researchers know that neuroblastoma is not the same in every child. Differences in the genetics of a tumour can affect how the disease behaves and how well it responds to treatment. By bringing together information from thousands of patients, scientists can look for patterns that would otherwise be impossible to see. 

The Data Manager will play a vital role in organising and linking information from international studies, ensuring that approved researchers can access the data they need to answer important questions about neuroblastoma. This work will help researchers better understand the disease, identify which children are most at risk, and support the development of more personalised treatment approaches. 

This project will help unlock the full value of existing neuroblastoma data, allowing researchers across the world to work together and learn from the experiences of thousands of children and families. 

By investing in this role, Solving Kids' Cancer UK is helping ensure that data already collected through international research can continue driving discoveries, bringing us closer to safer, more effective treatments and better outcomes for children with neuroblastoma.

Help create a better future for children with cancer

It's kindness from people like you that funds research into kinder and more effective treatments for children with neuroblastoma.

Image of a child with cancer playing in a ball pit at a Solving Kids' Cancer UK family fun day