Rupert dressed as an ElfRupert is smart and wise and always eager to impress. He leaves an impression with everyone he meets, loves jokes, Punch and Judy and magic shows, and is always a willing participant when he visits the pantomime.

Rupert is just four and started pre-school. He adores his teachers and especially enjoys music lessons, swimming, gymnastics and football. But he’s not been able to attend recently due to treatment and the risk of infection.

This is because Rupert is battling a disease no child should have to. He has high-risk neuroblastoma, an aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis.

Rupert has endured eight rounds of Rapid COJEC protocol chemotherapy, a nine hour surgery to remove his tumour, high dose chemo followed by a stem cell transplant and twelve sessions of radiotherapy. He is currently undergoing immunotherapy and will finish frontline treatment in January 2021. 

His family are raising funds for further treatment, either to get Rupert into remission or to try and keep the cancer away if the treatment goes to plan.

Rupert’s Story

After a long wait and  IVF Rupert arrived in 2015, followed by his little sister Margot two years later.

In October 2019 Rupert’s parents, Alice and Ollie, took him to their GP as he had no appetite and bouts of sickness over a couple of weeks. He was initially admitted to East Surrey Hospital with suspected appendicitis and then to the paediatric surgical unit at St Georges Hospital, Tooting.

After an awful week of endless blood draws, scans and finally a biopsy Rupert was diagnosed with a large retroperitoneal tumour, confirmed as high-risk neuroblastoma on 8th November 2019 and he started chemotherapy the following day.

Starting treatment meant that Rupert spent his fourth birthday at the Royal Marsden in Sutton where he is now being treated.

Treatment

Rupert has just completed eight rounds of Rapid COJEC protocol chemotherapy and will undergo a stem cell harvest and surgery over the next few weeks. Rupert will then have high dose chemotherapy followed by radiotherapy and immunotherapy.

As a result of chemotherapy, Rupert has already suffered some hearing loss and kidney damage and developed an allergy to platelet transfusions.

“Throughout all of this treatment, Rupert has remained his chatty, bossy self. He’s taken great interest in all his medical procedures and his current party trick is to recite his name band info - full name, date of birth, hospital number and allergies,” says Alice.

Rupert’s Fundraising Campaign

Rupert’s parents are raising funds for further treatment, either to get their son into remission or to try and keep the cancer away if treatment does go to plan. This could cost hundreds of thousands of pounds.

“We want to start proactively fundraising for treatments beyond the NHS so that we can offer Rupert the best chance of getting into remission and then preventing relapse. We desperately want him to grow up with Margot,” says Alice.

How you can help

There are many ways you can help Rupert: by making a personal donation; by sharing his story on Facebook, holding a fundraising event; getting sponsored to take on a challenge.

To donate by text, send “RUPERT” followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won’t matter if you leave a space before the number, if you include a ‘£’ sign or whether you use upper or lower case.

Download our free Rupert resources below, to support your fundraising.

Sponsorship Form Campaign Poster Event Poster

You can make a donation via this page.

If you’d like to help supporting Rupert’s campaign, please get in touch with the fundraising team on 0207 284 0800 and [email protected]

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