In loving memory of Jacob Jones

Jacob’s family started fundraising with Solving Kids’ Cancer to raise funds for Jacob to potentially access a clinical trial not available through the NHS to help him continue to fight neuroblastoma.

Jacob was diagnosed with high-risk neuroblastoma when he was two years old. Despite an aggressive regime of treatment, he relapsed in April 2016. Following this, he received additional chemotherapy with radiotherapy and immunotherapy.

After immunotherapy, his family had hoped that he would be able to access the Bivalent Vaccine clinical trial in New York but owing to a second relapse in July 2017, Jacob was no longer eligible for the trial. To try to get Jacob back into remission, he continued to have immunotherapy in combination with chemotherapy, but sadly his disease didn’t show a positive response to the treatment.

Next steps for Jacob involved participating in a phase 1 clinical trial at Great Ormond Street Hospital, which it was hoped would reduce or, at least, stabilise his disease. This meant lots of further hospital visits, and overnight stays for Jacob and his family.

Sadly, on 9 December 2017 Jacob’s family shared this devastating news:

“Just last week Jacob was kicking a football around with his much-loved cousins. Today at 11 am Jacob gained his Angel wings and joins all the other little soldiers who bravely fought neuroblastoma. As his parents, we will never understand the speed at which he was taken from us. RIP our gorgeous little boy. Mummy and daddy will remember you and love you forever X.”

As a way of maintaining Jacob’s legacy, his family planted a commemorative tree and arranged for a special bench at Marks Hall Arboretum & Gardens, Coggeshall, which he loved to visit. Notley Youth Football Club award the Jacob Jones Trophy each year to the most deserving member of the organisation. In addition, Jacob’s framed football shirt is on display in the Clubhouse at Braintree Town FC.

Following his passing, Jacob’s family have decided to keep his fundraising page open for those wishing to donate or fundraise in his memory. Funds raised in memory of Jacob will be used to support Solving Kids’ Cancer’s charitable activities including helping other children affected by neuroblastoma through family support and research.