In loving memory of Morgan Hayes

Little Morgan was a busy child, always having fun. He passed away after a three-year neuroblastoma fight in January 2018.

Morgan’s family shared this message:

“It is with a very heavy heart I write this on behalf of Ben, Sophie and their families. Morgan passed away peacefully in his sleep this morning, in the arms of his Mum, Dad and family. We thank you all for your ongoing support and kind words.”

Morgan’s story

Morgan was diagnosed with high-risk neuroblastoma at the age of 4. He had become lethargic, which his parents, Ben and Sophie, thought was a natural reaction to starting school.

Once he started vomiting and complaining of stomach pains they made an emergency appointment with their GP, who advised going to hospital. Blood tests and an x-ray showed an infection, but a course of antibiotics did nothing. Morgan had fluid from his hip removed and the hospital decided a CT scan was needed.

Morgan was diagnosed with stage 4 high-risk neuroblastoma – it had spread to the bone and bone marrow.

Morgan’s treatment regime was intensive. Months of chemotherapy, successful surgery to remove the primary tumour, stem cells harvest and transplant, high-dose chemotherapy, 3 weeks of radiotherapy to the original tumour site and 6 months of immunotherapy.

He finished frontline treatment in February 2017 and showed no evidence of the disease. Horribly, just 5 weeks later he began to complain of pains in his arm, legs and side. Morgan had relapsed and “we were told that because it was in the central nervous system it was life-threatening with the worst prognosis imaginable,” said Ben and Sophie.

After exhausting their options through the NHS, the family fundraised £191,000 with Solving Kids’ Cancer to access a clinical trial at the Memorial Sloan Kettering Cancer Center in New York, to try to clear the disease again.

The family made the trip but sadly couldn’t access the treatment as Morgan’s disease had progressed too far. He sadly passed away a couple of months later in early 2018.

His page will remain open for any donations made in his memory.

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