Bron Ellis Expand Bron Ellis became a trustee in February 2018. She is Senior Vice President of Sales at Regulatory Data Corporation, a leading provider of governance, risk, and compliance software and data solutions and has worked in the financial services arena for more than 25 years. Bron holds an MBA from Cass Business School and has already overseen the introduction of the charity's annual Christmas Carol Concert. She lives in London, is married to Nick and has four grown-up children. “As a Trustee, my focus is to support the team of dedicated professionals to achieve their strategy and to assist in any way possible to help Solving Kids’ Cancer meet and exceed their fundraising targets. We have an enormous responsibility on our shoulders. We support the needs of children that are diagnosed with neuroblastoma, with all the pain, anguish and heartache that brings to them and their families. But we are equally determined to drive research forward - no child should be dying from this disease. I am humbled to be part of this charity whose mission is to help save children’s lives and support families fight this disease every step of the way.”
David Coulon, Treasurer Expand David Coulon became a Trustee of Solving Kids' Cancer in August 2017. He is a Partner at PricewaterhouseCoopers where he provides audit and advisory services to the resources industry. A Frenchman, he moved to the UK in 1999 for a two-year secondment, which ended up lasting a little longer! Outside of work, he enjoys spending time with his partner, Elena and young twins. He also runs the odd half marathon to keep fit enough to live his real passion for food and wine! “Throughout my life, I’ve been lucky to benefit from a strong community, and for a while now, I’ve felt that it was my turn to contribute to it, which Solving Kids’ Cancer gives me the opportunity to do. As a Trustee, my focus is to bring my financial expertise to bear and to help us to achieve our strategic objectives set out in our five-year plan. As soon as I joined, I was humbled by the stories of the children and their families, by their courage and their resilience and I witnessed this first hand at our annual conference in 2017. I am also impressed by the passion, energy and commitment of our staff. What motivates me is to work with them, and the other board members, to contribute to making a difference to those suffering because of neuroblastoma, in the hope that one day, all children will recover from it.”
Matt White Expand Matt White first became involved with the charity in 2009 when his son Felix was diagnosed with high-risk neuroblastoma. The family were treated at the Royal Marsden in Sutton before going on to Germany for antibody treatment and, when Felix relapsed, the Children’s Hospital of Philadelphia for therapy as part of a clinical trial. Sadly, Felix passed away in 2011. Four years later in 2015, Matt became a Trustee of the charity. He lives in Brighton with his wife, Colleen, and their three other children. He works as a Management Consultant, and in his spare time volunteers for the Samaritans. He also does triathlons and open-water swimming, none of which he’s particularly good at but it gets him out of the house (he tells us)! “This charity means a great deal to me and always will. It was always there just when we needed it, giving our family support, educating us on potential paths to take and paving the way for potentially life-saving treatment for Felix. I want to help ensure that other families who face this terrible disease can have the same access to the brilliant support from Solving Kids' Cancer that we did. Despite what eventually happened to our beautiful boy, I have never given up hope, and never will. As a Trustee, my focus is to support the charity’s strategic clarity and its ability to raise much needed operational funds. We have a brilliant team doing incredibly important work and it’s critical that we raise and sustain enough finance year on year to help this continue.”
Joey Tabone Expand Joey Tabone is a Director at Business in the Community, The Prince of Wales’s Responsible Business Network, where his work helps to create a fairer society and a more sustainable future. Joey joined The Prince’s charities in 2007. Prior to this, he worked for the Australian Government’s Department of Climate Change where he managed Australia’s largest carbon reduction programme. His charitable interests in Australia include 7 years as President of The AIDS Council of the Australian Capital Territory where he helped identify support for people living with HIV and AIDS. Joey joined the Board of Trustees in 2015, bringing with him his experience working within the UK charitable sector and leading a health-related charity in Australia. His initial interest was to support building governance structures to help reinforce the charity’s capabilities. Joey became Chair of the Board in November 2016, stepping back in November 2018 when Nick Bird became Chair. Joey holds other non-executive roles in the UK including Trustee of The Environmental Law Foundation and Patron of The Sir John Soane Museum in London. “My personal motivation to help Solving Kids’ Cancer is twofold, firstly to learn more about cancer treatment and care, having lost family members to cancer-related diseases and secondly to demonstrate the important contribution to society that a user-led charity makes. In my professional life, I believe I have gained more experience and empathy in working alongside and within charities and firmly believe that charities and the people that work within them, make an invaluable contribution to society and at their heart, are a force for good.”
Nick Bird, Chair of Trustees and Research Director Expand Nick Bird first became involved in the charity in 2009 when his youngest son, Adam, was diagnosed with high-risk neuroblastoma. After Adam showed little response to standard frontline therapy, Nick and his family travelled with him to both Germany and America for treatment. While seeking options for Adam, Nick became more involved in research, attending symposiums and meetings. Following Adam’s death in 2013, Nick continued to engage in activities relating to research and advocacy on behalf of other children with neuroblastoma. In 2016 he became a member of the National Cancer Research Institute Children’s Cancer & Leukaemia Clinical Studies Group (NCRI CCL CSG), as well as a member of the specialist sub-group for neuroblastoma. Nick joined Solving Kids' Cancer's Board of Trustees in April 2016 and became Chair in November 2018. He is committed to trying to improve the outlook for children in the UK diagnosed neuroblastoma. Outside of his voluntary life he works for a technology company in the financial services sector and lives in Epsom with his wife and their two other children. In his spare time, he enjoys swimming, cycling, and running, and has completed a number of marathons … with several more to come (he says!). "Neuroblastoma claims the lives of infants and young children, just starting out in life. Whilst there are brilliant doctors and researchers trying to find new ways to beat this disease, at present the most effective weapons continue to be the old artillery of chemotherapy, radiotherapy and surgery. And despite the most intensive treatment regime for any cancer, over half the children diagnosed with high-risk neuroblastoma still go on to die, whilst the majority of those who survive are left with serious, life-long, side-effects. Researchers need our help; to engage with them, challenge them, steer them, support them, push them, and provide the funding commitments that make research happen, that in turn makes change happen. We must speak up for the children affected by this terrible disease, for they are simply too young to have a voice of their own."
Alexandra Lane Expand Alex first became aware of SKC when her eldest son Archie, was diagnosed with stage 4 high risk neuroblastoma. He was 2 years old at the time. Despite initially suffering with the toxicity of treatment, Archie showed no sign of disease after induction chemotherapy. However, he relapsed shortly after high dose chemo and the disease progressed very rapidly. He passed away at Great Ormond Street in June 2018. Since Archie’s death Alex returned to work as a lawyer specialising in Health care regulatory work. She has continued to follow Solving Kids Cancer and shares their drive and passion to find kinder, more effective treatment and better outcomes for children like Archie. She lives in Hertfordshire with Archie’s younger brother Oscar and their Dad, Max. You can read more about Archie on his facebook page ‘Super Archie’s Army’. “Like most people I had never heard of neuroblastoma until Archie was diagnosed in 2017. And like most people I was shocked to discover how little awareness, understanding and funding there is of childhood cancer generally. It is simply unacceptable that children are still being treated with the same brutally harsh treatments that were available 50 years ago. So little progress has been made. Society has let these children down, when we need to be their advocates. They are too young to understand let alone demand the funding, research and future that they deserve. I am honoured to join the team at Solving Kids Cancer and share their passion and commitment to make a difference to children and families affected by neuroblastoma. Having a child with cancer changes you forever. Whilst I know there will be more children like Archie, I have hope that by collectively driving forward awareness, funding and research we can and will make a real difference in the future.”