Freddie's family shared the devastating news that he passed away on 3rd December 2019.

"It breaks our hearts to let you know Freddie passed away yesterday. Our beautiful, brave boy fought until the end but his little body just didn't have the strength to fight any more.

He passed peacefully, surrounded by family and those who loved him dearly.

He was looked after so well by the incredibly supportive and caring staff on ward 31 of Leeds General Infirmary and we cannot thank these amazing medical professionals enough. They showed so much love towards Freddie and made the last few days a lot easier for us.

Candlelighters staff also brought us a lot of comfort and support and created some beautiful keepsakes for us.

We are also very thankful for all the support we have received from every one of you over the last ten months and know we can rely on your continued support over the coming days, weeks and months."

Freddie's story

Freddie’s fight began when he was two years old, with trips to the doctors every couple of weeks. He wasn’t eating like usual. He started vomiting, losing weight, stopped sleeping through the night and became very clingy.

Freddie’s symptoms worsened, and he was immediately sent to York District Hospital by his GP, where an ultrasound scan was carried out. Speaking about what happened on that day, his parents said: “We were taken into a room and our worst fears were confirmed, as the bottom fell out of our world: Freddie had cancer.”

Freddie’s treatment

Freddie needed 80 days of chemotherapy, followed by surgery to remove the tumour, then a stem cell transplant. During these gruelling three months, Freddie was admitted to hospital with high temperatures and infections as a result of the chemotherapy’s effects on his immune system.

It all caused Freddie intense pain. “We couldn’t hold him because of the pain in his spine from the neuroblastoma, he would say it hurt when he was sat or standing,” his parents said. “Heartbreaking when your little boy is feeling poorly and needs comforting but is in too much pain to give him a hug.”

Freddie has also spent a long time in an isolation ward, having had high dose chemotherapy and a stem cell transplant. He is the most poorly he has been throughout his 6-month fight. Freddie still has immunotherapy to come, when we all hope he will show no evidence of this awful disease.

Fundraising campaign

Freddie’s parents, Emily and Phillip, are fundraising for further treatment, either to get their precious boy into remission or to keep the cancer away if his frontline treatment does go to plan.

They are particularly interested in the Bivalent Vaccine clinical trial at Memorial Sloan-Kettering Cancer Center in New York that’s showing promising signs in reducing the high chances of relapse. It could cost hundreds of thousands of pounds, but it could also be Freddie’s best chance of long-term survival.

“We ask you from the bottom of our hearts to please help our little Freddie as much as you are able.”

How you can help

There are many ways you can help Freddie: by making a personal donation; holding a fundraising event; getting sponsored to take on a challenge; or simply by following and sharing Freddie’s story through his: Facebook page or Twitter account.

To donate by text, send “FREDDIESFIGHT” followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won’t matter if you leave a space before the number, if you include a ‘£’ sign or whether you use upper or lower case.

Download our free Freddie resources (below) to support your fundraising, and CLICK HERE for even more resources, including fundraising ideas, templates and guidance.

Sponsorship Form Campaign Poster Event Poster

If you’d like to help in supporting Freddie’s campaign, please get in touch with the fundraising team on 0207 284 0800 and [email protected].

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