Always remembering

Harvey

A cheeky and loving Toy Story fan, Harvey always made people smile. Harvey passed away when he was nine years old.

Harvey’s story 

Harvey had an older sister, Olivia and a twin brother and partner in crime, Spencer. He was three years old when he was diagnosed with neuroblastoma in 2010.

He was the only child in the world known to have both Down’s syndrome and to be affected by neuroblastoma.

He went through two rounds of chemotherapy, two long surgeries, two weeks of targeted radiotherapy with limited contact and an 18-month course of Cis Retinoic Acid.

To try to help Harvey beat the disease, his family launched a fundraising campaign with Solving Kids’ Cancer UK so that he could access a pioneering clinical trial in America. But before he could access the trial, Harvey relapsed.

Harvey passed away in November 2015 in the arms of his family.

"Harvey fell asleep in our arms yesterday surrounded by people he loved and who loved him very much. He is free from pain now, but we miss him dearly. My beautiful cheeky Monkey. Life will never be the same."

Harvey’s mum, Sarah

Harvey's legacy

Harvey's legacy lives on through the funds raised in support of his fundraising campaign for access to treatment contributing to funding a pioneering NHS clinical trial for children with relapsed or refractory neuroblastoma. The MiNivAn clinical trial in Southampton provides hope to other families affected by neuroblastoma.

His mum, Sarah says, "Harvey touched many people’s hearts, and we can never express how grateful we are for all the support we received when fundraising for his treatment abroad. Sadly, for us, this treatment was never to be but being able to use the funds for this new treatment, giving hope to other families, is a hugely positive step. Families having to raise funds, and travel across the world for treatment that could help their children beat neuroblastoma is an unacceptable situation to be in. Neuroblastoma is difficult to treat, and trials are few and far between but without vital funds for clinical trials, children will continue to be taken by this cruel disease and families will continue to be devastated."

_{Donations made in loving memory of children}

_{Funds raised in loving memory of Harvey will be used to support other children like Harvey and their families through Solving Kids' Cancer UK's activities. Funds raised through the previous fundraising campaign for access to treatment have been used to support other children and families through Solving Kids' Cancer UK's research activities.}