Eva had a Hickman line inserted and an NG tube and Rapid COJEC chemotherapy commenced. MIBG scans showed a good response to treatment, so surgery was booked in, but the day before, there was a change to the plan. Although Eva had had a good response to Rapid COJEC, the surgeon wasn’t comfortable with where the tumour sat - too close to organs - so Eva was given an additional two cycles of TVD chemotherapy. Despite TVD shrinking the tumour more, the surgeon still wasn’t happy, so Eva went onto high-dose chemotherapy in March 2015.
Surgery eventually took place in April 2015, which removed 95% and Eva was officially classed as NED (no evidence of disease). Eva then had 15 cycles of radiotherapy and six months of antibody treatment. She finished treatment on 6th November 2015 when she was three years old. There was a firework display nearby that night, which Hayley told Eva was for her end of treatment celebrations after she rang the end of treatment bell.
Then in June 2016, a routine scan revealed Eva had relapsed. Hayley was told that although they would treat the relapse, they were doing so to prolong life rather than cure Eva. Eva’s Hickman line was scheduled to be put back in.
After an MRI scan, the doctors said the relapse was inconclusive. While the original scan categorically showed a relapse, they couldn’t find what they had originally seen. An MIBG scan was needed to confirm, but they couldn’t get the isotope needed for the scan for another two weeks. They spent those two weeks in complete limbo in this life-or-death situation. Fortunately, once the scan took place, doctors were able to confirm that Eva had not relapsed.
Then in February 2020, there was a lump in Eva’s neck with ‘suspicious qualities’. Hayley was told there was a 95% chance it meant relapse with Eva’s history and the lump qualities. The same surgeon who operated on Eva initially operated on her again. They endured a fearful week waiting for the biopsy results to confirm whether it was neuroblastoma, but it wasn’t – Eva had not relapsed.
Eva is now 10 and is a truly incredible young lady.