Initially, it was Hayley’s sister, Jessica, who caused the family great concern when she was diagnosed with stage 4s neuroblastoma as a baby. Thankfully, at the point Hayley became unwell, Jessica was 5 years post-treatment and in remission.
It was just before her 4th birthday that Hayley started complaining that her legs hurt, then later she said that she had a sore tummy. After many visits to the GP and several hospital tests, she was diagnosed with stage 4 high-risk neuroblastoma.
Hayley’s frontline treatment included 8 cycles of chemotherapy – treatment that didn’t have the desired effect on her cancer, so it was switched to a different chemotherapy combination called TVD. After this, Hayley had radiotherapy and then immunotherapy.
Hayley’s parents, Brian and Zoe, said Hayley handled her treatment - as well as all tests, scans, pokes and prods - like an absolute star. She was incredibly brave, and they were very proud.
Sadly, despite all the intensive treatment received, residual disease remained and there was further disease progression. Beyond this, there was no more treatment planned because of the impact of previous treatment on Hayley’s bone marrow function.
Hayley passed away on 15th September 2018.
Donations made in loving memory of children
Funds raised in loving memory of Hayley will be used to support other children like Hayley and their families through Solving Kids' Cancer UK's activities. Any funds raised through a previous fundraising campaign for access to treatment which were not spent on the child's treatment and pastoral needs are used to support other children and families through Solving Kids' Cancer UK's activities.