Kira’s 19 years old and has been fighting neuroblastoma since she was 11. She’s faced years of gruelling treatment to try to get rid of her disease and has relapsed eight times.
Kira loves music and going to live gigs. She enjoys time spent with friends, socialising, eating out, nightclubbing, laughing and having fun – enjoying herself generally!
Over the past year whilst undergoing treatment for disease progression, Kira has completed her A Levels and secured placements at two universities to study Paediatric Nursing. Her latest scan results in July 2022 show she is once again in remission with no evidence of active disease.
Relapsed neuroblastoma is particularly difficult to treat, and treatment options are limited. Kira and her family are continuing to fundraise so that Kira can access any potentially life-saving treatment needed that is not available through the NHS, which could cost hundreds of thousands of pounds. Follow Kira's story on social media.
In January 2014, 11-year-old Kira began to periodically complain of feeling unwell with stabbing pains in her side. Over the following seven months, Kira’s mum, repeatedly took her to their local GP surgery.
In July 2014, another visit to the doctor led to Kira having a blood test. As the results showed that coeliac markers were slightly high, Kira was referred to Gastroenterology for investigations, which included an ultrasound of her abdominal area to check the surrounding areas of her bowels.
Kira’s parents, Aud and Ronnie, were not prepared for what they were told following the ultrasound, that Kira had a huge mass in her abdomen.
Soon after the diagnosis, Kira began frontline treatment for neuroblastoma. This included six rounds of chemotherapy, which reduced the tumour by 80%. This was then followed by major abdominal surgery, which removed a further 16% of the remaining 20% of the tumour. Total resection was not possible because the tumour surrounded major blood vessels. Following surgery, Kira then received radiotherapy followed by six months of an oral drug.
In November 2015, Kira’s end-of-treatment scan confirmed that she was in remission.
Devastatingly, Kira’s cancer came back.
Despite the best medical efforts, it was not possible to remove a growing tumour during a major operation in January 2018. To give Kira the best hope of continuing her life free from this disease, she needed potentially life-saving surgery at Memorial Sloan Kettering Cancer Center in New York.
Kira’s parents, along with her cancer specialist, identified a world-renowned surgeon who specialises in the most difficult to remove tumours. The family then launched an urgent fundraising appeal to raise the £340,000 needed to access the surgery, and thanks to enormous public generosity, the fundraising target was surpassed. Kira had the operation in 2018 and it was a success. In June 2018, Kira’s scans were clear.
But by August 2018 an MRI scan showed neuroblastoma in the pancreatic area and it was decided that Proton Beam Therapy in New Jersey would be Kira’s best treatment option. Kira was able to access the therapy because of the surplus funds raised through the fundraising campaign for surgery.
Sadly, Kira’s cancer continued to grow during Proton Beam Therapy and scans in January 2019 showed new spots of disease in her abdomen. Her family were given the devastating news that Kira's disease is incurable.
Since April 2019, Kira has been granted compassionate use of the third generation ALK inhibitor Lorlatinib drug, part-funded by Solving Kids’ Cancer UK. Due to Lorlatinib’s minimal toxicity, Kira has been able to live her life away from hospital.
In October 2021, scans showed disease progression in her pancreas. Surgery and radiotherapy were ruled out and she completed a six-month treatment plan in June 2022 using chemo-immunotherapy, in addition to Lorlatinib. Kira has had a good response to the latest treatment plan, and currently shows no evidence of active disease.
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Funds raised will go towards helping Kira and her family. If Kira no longer needs the funds or is in remission five years post the end of successful treatment, the funds will be used to support other children and families affected by neuroblastoma through our activities. For children with high-risk neuroblastoma, like Kira, the survival rate is much lower than other childhood cancers. Upon relapse, this rate reduces even further.
Donated on: 7th April 2023
Much love ??
Donated on: 1st March 2023
Manual adjustment by Solving Kids' Cancer UK.
Donated on: 2nd September 2022
Love From Gillian Graeme Aimee & Ryan xx
Donated on: 28th August 2022
Donated on: 24th May 2022
Donated on: 7th July 2021
Donated on: 13th October 2020
Donated on: 24th December 2019
Donated on: 21st November 2019
Donated on: 4th November 2019
My donation is for Kira Noble who is being supported by friends Shirley and Robert Chapman. Best wishes to Kira-Bill Kelly
Donated on: 1st November 2019
Donated on: 1st October 2019
Donated on: 29th September 2019
Jim and Jeanette Connor raised '865 from a collection at their 60 wedding celebrations for Kira The Machine
Donated on: 10th September 2019
Another donation for Hazel's Head Shave x
Donated on: 26th August 2019
Paid in on behalf of Moira Scott
Donated on: 14th August 2019
Previous donations to Solving Kids' Cancer