Peter's campaign

13-year-old Peter is a keen gamer and loves all things Lego and playing Minecraft. Since January 2022, he has been enrolled on the DFMO study in Charlotte, made possible thanks to an incredible community of support for his campaign.

Fundraising total£160,573.00

Peter enjoys spending time cycling, swimming and crafting, especially drawing and cross-stitching and his favourite animal is a rabbit!

On New Year's Eve 2018, after complaining of backache and tingles in one leg it was confirmed that Peter had a growth in his thorax that was pressing on his spinal cord, causing a spinal cord injury. After emergency surgery, his spinal cord injury did not make the immediate recovery that was hoped for, leaving him with no movement or sensation in his lower body. Days after the surgery his parents were given the devastating news that the growth in his thorax was neuroblastoma.

After enduring intense frontline treatment, Peter was 'no evidence of disease' in February 2020. Just six months later, in August 2020, after noticing a lump on his skull, parents Mandy and Martin were told that Peter had sadly relapsed with the disease spreading throughout his body.

Relapsed neuroblastoma is difficult to treat and options are limited on the NHS. Peter’s campaign remains open in case he needs potentially life-saving treatment in the future not available through the NHS, which could cost hundreds of thousands of pounds. Follow Peter's story on social media. 

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A donation to Peter’s campaign could help him access potentially life-saving treatment in the future that’s not available through the NHS.

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Peter’s story

Peter’s parents first noticed something wasn’t right in December 2018. He had been complaining on and off for a couple of weeks about backache and on a couple of occasions about tingles running up and down one leg. Between Christmas and New Year, these symptoms escalated to wobbly walking and difficulty going up and down stairs. As the family were away for the Christmas period, on New Year’s Eve, Peter’s mum, Mandy, took him to his grandmother’s GP who immediately sent the family to A&E.

A few hours later and following an MRI scan, it was confirmed that Peter had a growth in his thorax. Following a biopsy, a couple of days later, Peter suffered a spinal cord injury from where the growth was pressing on his spinal cord. He underwent emergency surgery to remove the part of the growth causing the pressure. The operation was a success in releasing the pressure, but Peter’s spinal cord injury did not make the immediate recovery hoped for, leaving him with no movement or sensation in his lower body.

Twelve days after he was admitted to hospital, Peter was well enough to be transferred from Edinburgh Sick Kids to Manchester Children’s Hospital, which was nearer to home. But before the family were transferred, they were given the devastating news that the growth in his thorax was neuroblastoma, and he began an intensive course of chemotherapy. During this time the family received some good news – Peter’s cancer originally thought to be high-risk neuroblastoma was downgraded to intermediate-risk neuroblastoma. His chances were further improved in May 2019 when surgeons were able to completely remove what remained of the tumour after chemotherapy. Peter then had a short course of radiotherapy to the tumour site and six months of maintenance treatment to prevent the cancer from returning.

Peter’s treatment officially finished in February 2020, and the attention was turned to his spinal cord injury. In over a year since it had happened, he had made amazing progress with his rehabilitation, regaining strength and independence, and was getting involved in many different activities including hand-cycling and swimming. The pandemic put a stop to many things, but his family found ways for Peter to stay active and used the precious time at home together to take a breath after many months of trauma. They also began to make plans for the future post-pandemic. Peter was still being scanned and tested regularly but his parents felt as if the cancer was behind them.

Relapse and enrolling on the BEACON study

In August 2020, Peter noticed a lump on his skull. He was scanned and a couple of weeks later the family received the devastating news that he had relapsed. Adding to the devastation, neuroblastoma had spread throughout his body. He had a tumour on his skull, lesions on his pelvis and evidence of disease in his bone marrow, classing his relapse as high-risk and vastly reducing his chances of long-term survival.

He was immediately registered for the BEACON study and was randomised to the treatment arm that treats with chemotherapy only. To begin with, the treatment kept the tumour growth at bay, and he was classed as ‘stable’ but after four cycles of treatment, the tumour began to grow again.

Peter crossed over to the alternative treatment arm of the trial, which combines chemotherapy and immunotherapy and had a further six cycles of treatment. The tumour and pelvic lesions remained stable throughout, and the family received the wonderful news that there was no longer any evidence of disease in his bone marrow.

Next steps and enrolling on the DFMO study

Peter had radiotherapy to his skull tumour, which all went to plan. Following more scans in the Autumn, the family were delighted to be told that Peter's pelvic lesions were no longer MIBG-positive and there were early signs of the radiotherapy having an impact on the skull tumour. At this point, there were no further treatment options available for Peter in the UK unless his disease worsened again, so the family decided to 'wait and watch' until the next set of scans in January. Following the scans, they hoped to access the DFMO study in Charlotte, North Carolina.

Peter spent the Autumn term settling in at high school and taking a much-needed break from treatment and hospital appointments. It was an anxious time though and a relief when scans in January showed further shrinkage of the skull tumour and no progression of disease elsewhere. With these results, the family were able to go ahead with plans to enrol Peter on the DFMO study and they flew out to North Carolina for the first dose of treatment at the end of January 2022. If Peter's disease remains stable or better, he will continue the DFMO study until January 2024 with a further five trips to the US required as part of the trial.

Solving Kids' Cancer UK's children's fundraising campaigns 

Funds raised will go towards helping Peter and his family. If Peter no longer needs the funds or is in remission five years post the end of successful treatment, the funds will be used to support other children and families affected by neuroblastoma through our activities. For children with high-risk neuroblastoma, like Peter, the survival rate is much lower than other childhood cancers. Upon relapse, this rate reduces even further.

Donations and comments

Anonymous£117.72

Donated on: 22nd September 2023

Manual adjustment by Solving Kids' Cancer UK.

Anonymous£10.20

Donated on: 2nd May 2023

Chrissie Williams£5.10

Donated on: 2nd May 2023

Anonymous£10.20

Donated on: 3rd April 2023

Chrissie Williams£5.10

Donated on: 3rd April 2023

Anonymous£121.30

Donated on: 22nd March 2023

Manual adjustment by Solving Kids' Cancer UK.

Anonymous£10.20

Donated on: 2nd March 2023

Chrissie Williams£5.10

Donated on: 1st March 2023

Anonymous£139.00

Donated on: 27th February 2023

Manual adjustment by Solving Kids' Cancer UK.

Anonymous£10.20

Donated on: 2nd February 2023

Chrissie Williams£5.10

Donated on: 1st February 2023

Chrissie Williams£5.10

Donated on: 3rd January 2023

Anonymous£10.20

Donated on: 3rd January 2023

Anonymous£10.20

Donated on: 2nd December 2022

Anonymous£5.10

Donated on: 1st December 2022

Anonymous£325.30

Donated on: 11th November 2022

Manual adjustment by Solving Kids' Cancer UK.

Anonymous£10.20

Donated on: 2nd November 2022

Anonymous£5.10

Donated on: 1st November 2022

Anonymous£76.50

Donated on: 5th October 2022

Funds raised through sales of cards

Anonymous£5.10

Donated on: 3rd October 2022

Anonymous£10.20

Donated on: 3rd October 2022

Anonymous£67.30

Donated on: 16th September 2022

Manual adjustment by Solving Kids' Cancer UK.

Anonymous£10.20

Donated on: 2nd September 2022

Anonymous£5.10

Donated on: 1st September 2022

Anonymous£105.53

Donated on: 31st August 2022

Anonymous£99.00

Donated on: 19th August 2022

Anonymous£10.20

Donated on: 2nd August 2022

Anonymous£5.10

Donated on: 1st August 2022

Anonymous£2,365.70

Donated on: 23rd July 2022

Manual adjustment by Solving Kids' Cancer UK.

Anonymous£20.40

Donated on: 8th July 2022